In today’s On the Square, Russell E. Saltzman remembers Jenifer Estess, the actress who lost her career and her life to A.L.S.:
I never met her, not really, though thirteen years ago we once spent a long morning in same U.S. Senate hearing room. We were on opposing sides of a debate on embryonic stem cell use. The hearing was staged—that’s the word—by the late Arlen Specter, senator from Pennsylvania, and Sen. Tom Harkin of Iowa. The two of them co-sponsored a Senate bill permitting federal funding for embryonic stem cell research.
Read the rest here. Estess’ memoir on her struggles with A.L.S., entitled Tales from the Bed: On Living, Dying, and Having It All, was published posthumously in 2004. You can also read this contemporary account from People magazine about how she and her sisters worked together in response to her diagnosis.