The Reality of Hope

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After she died, it was as if I had broken my arm. A part of me ached all the time, and something that had been functional was now useless, and everything about my daily routine needed to be navigated differently. It was difficult, for instance, to stand in line at the post office or buy groceries or make dinner. Nothing seemed to matter anymore… . Continue Reading »

The Good Life

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In a letter to the editor of the New York Times, William Motley, a geneticist of Oxford University, writes, “Fighting Down syndrome with prenatal screening does not ‘border on eugenics.’ It is a ‘search-and-destroy mission’ on the disease, not on a category of citizens . . . . ” . . . . Continue Reading »

Evidence-Based Standard of Care

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I remember how I felt two hours after my daughter Penny was born, when I first found out that she had Down syndrome. I sifted through my brain for some scrap of information about this “thing” that had just happened to our family. All I could come up with was early death and mental . . . . Continue Reading »