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Love, Limits, and Loss

A too-long-undiagnosed bout with Lyme Disease has left me challenged with arthritis and some neurological damage. The arthritis has its uses: I can predict rain, and the pain gives me something to offer up in prayer, or as penance.

Elizabeth Scalia appears every Tuesday in On the SquareNot so the neurological issues. At the peak of my illness I was unable to figure out how to do the dishes; my organizational skills have never fully recovered, and verbally I sometimes wander into strange lands, referring to cereal as cookies, or to hats as helmets. When that happens, and after I have apologized to my family for sending them into hysterics or on goose chases, I will ask, “Are you going to get rid of me, when my mind is gone?”

“We’re going to be confused a lot of the time,” they admit.

“Well,” I shrug, “as long as you still love me.”

CBS News correspondent Barry Petersen recently filed a report on the early-onset Alzheimer’s that began affecting his wife, Jan Chorlton, at the age of forty. It is an undeniably moving story; after introducing the viewer to images of the beautiful and lively Chorlton, the report shows us Petersen’s sixty-year old, still-beautiful wife, now living in what appears to be a top-notch assisted-living facility. She is unable to sustain simple conversation or to recognize her husband. Chorlton talks of a man she will always love, while Petersen openly weeps. When he asks his wife if she can name that man, she giggles, “Mr. Happy.”

Medical experts are introduced and they declare that there is no treatment for Alzheimer’s Disease, and no way to prevent it. In the near-future, we are told, sixteen million Americans will be diagnosed with Alzheimer’s Disease.

Petersen reveals that he is now in a relationship with a widow; they live together, and they both love Jan in what one of them calls “this very peculiar new American family.” The piece closes challenging anyone to gainsay them, who has not walked in their shoes.

But, was it not precisely for such situations that marriage vows were designed? “For better, for worse, for richer, for poorer, in sickness and in health, together or apart.” Love, which is limitless, is supposed to be strong enough—even if we do not think we are—to survive these challenges.

The idea is not exclusive to churches; marital vows are common to secularists, as well, and societies have been built upon them for millennia. Why, suddenly, do they no longer “work”? Is it a generational thing? Are the same baby boomers who would not submit to military conscription or unplanned parenthood now refusing to embrace the difficult, shattering work of suffering for love? Has the church done such a poor job of demonstrating the efficacy of such surrender that there is simply no capacity for it left, in the post-modern world?

A neighbor of mine works as a therapist for Alzheimer’s patients, both high-functioning and low. She recently described one sixty-ish daily visitor. “He is a saint. Every day he brings his lunch and eats with his wife. She doesn’t recognize him, so every day she is meeting a new friend. When we told him he needn’t come so often he said, ‘But she is my bride; if I did not see her, I would miss her.’”

The man’s wife had changed, but if she was no longer capable of seeing her groom, he still beheld and adored his bride. Their marriage, then, is the microcosmic reflection of the macro-love of God for his people and the love of Christ for his church. Love without limit, love without fear, love without desertion; love in joy and in pain, love in the shallows and the depths, love without end.

We cannot see God except as he is made manifest through us, and in the covenant of marriage his faithfulness is beautifully reflected. We look to this manifestation—in all its turbulent courses—to get an inkling of him. When we cannot see the great love of God reflected so near to us, we are diminished.

When love is rationalized into limits, we have sold love, and ourselves, short. If God is love, we have sold God short, too. We have chosen to walk around a fire, rather than through it, chosen not to trust that our sufferings have meaning and that they are, on balance, the crucibles of our commonalities, which mold and strengthen our societies.

Petersen says his wife’s love has been “lost to the long-goodbye of Alzheimer’s.” That suggests a perspective that sees love, and life, as finite—a measure brought to close, and the rest is silence.

To the nameless, lunch-bearing husband of my neighbor’s acquaintance, love is not lost; it is wholly there and alive. Petersen’s love is not “lost,” either, but perhaps he cannot quite perceive its nearness because he has dropped the lens of eternity.

Hard times are endurable, and suffering can be borne; if humanity no longer believes that, it will quickly extinguish itself, in an effort to go through life anaesthetized and feeling nothing but “fine.”

If mentally absent spouses can credibly be warehoused and apportioned a third of a marriage, that will quickly devolve into something more banal and expedient, particularly for those lacking means. The lives of “gone” spouses will eventually be deemed too expensive to sustain, and another thread in the seamless garment of life-and-death issues will have frayed and snapped.

I cannot judge Barry Petersen, and I would not; that is God’s job. I have no idea what torments he has endured, or how he came to his decisions. But it is not enough to ride a sentimental wave of emotion. Those choices will resonate within our consciences, eventually affecting medical and legislative actions and further challenging the churches.

I am a woman with neurological problems, and these questions about the limits of life and love, awkward and unwelcome as they are, must be asked, before much more is lost.

Elizabeth Scalia is a contributing writer for First Things. She blogs at The Anchoress.

Comments:

8.10.2010 | 9:37am
Thank you for this beautiful insight into Alzheimer’s and marriage. My mother-in-law has Alzheimers and my father-in-law said they promised each other they would not allow the other to go to a nursing home. We have gently pressured him into considering it but he will not. He has some help at home but he insists on taking care of most of her needs. We have watched him become more loving towards her as her disease has progressed. He is a witness to his children and grandchildren of love and commitment.
8.10.2010 | 10:38am
Today's papers announce that a "100%" test for diagnosing and predicting Alzheimer's Disease using spinal fluid has now been perfected. This will cause problems in the absence of effective treatment. Surely there will be false positive tests, diagnosing persons who do not actually have the disease. It is quite understandable that the author of this moving narrative may be in some way threatened by the experience of Barry Petersen. But Mr. Petersen has gained a gentle happiness in life and his wife has not been physically or emotionally neglected. Life is complex and difficult and the maximization of happiness can sometimes be justifiable if no one is harmed.
8.10.2010 | 11:51am
pam says:
Mary Ellen that is a beautiful story.

Sometimes God takes us by the hand and asks us to walk through the fire knowing that if we do we will come closer to that Divine Love that is waiting for all of us. For whatever reason Barry Peterson refused to walk through the fire so for now he can not understand the increase of love and joy that God had planned for him. He and all those around him have lost out on a great gift.

I don't believe the author is threatened by the experience of Barry Peterson. I think she understands what Barry Peterson is loosing out on.
8.10.2010 | 11:52am
Scott says:
While I watch aghast at this ever-increasing trend toward limiting the scope of one's loving commitments, I am troubled by the number of people around me (both those identifying as Christian and those not) who are taking up this new ethos. My question, and I leave it open to anyone who wishes to comment, is 'how am I to relate to these people?' I do not preach at them, for I know that tends to be less than effective, but I am constantly taken for one who is in agreement with their choices. And, of course, 'silence is consent'. I also have my daughter around these people who from time to time express their convictions in terms that impugn any who might hold contrary views. Are Christians, or those Christians who hold to traditional notions of what their vows of love mean left with only the choice of sequestering themselves away from the world?
8.10.2010 | 12:03pm
peregrinator says:
Amen. This is not something that our culture of comfort wants to hear, nor do we associate love with the endurance, the familiarity with and willingness to experience pain, and the courage that we still recognize (dimly) is needed for any undertaking that truly matters.

But love without these things is ... not love. In trying to articulate a response, I find myself retreating into poetry. Once we had a better understanding.

549

That I did always love
I bring thee Proof
That till I loved
I never lived—Enough—

That I shall love alway—
I argue thee
That love is life—
And life hath Immortality—

This—dost thou doubt—Sweet—
Then have I
Nothing to show
But Calvary—

Emily Dickinson
8.10.2010 | 12:32pm
JDD says:
Mike,


"...But Mr. Petersen has gained a gentle happiness in life and his wife has not been physically or emotionally neglected. ...the maximization of happiness can sometimes be justifiable if no one is harmed.


I won't presume that I'll immediately change your mind, and let me emphasize that all of this is not to judge the man in the interview - it is to respond to your comments. Here are some thoughts in response:


How have you defined happiness, and how can you measure it? Some of the most happy times of my life have been when I'm serving and loving my wife during times of illness.


Not emotionally or physically neglected? By whose measuring stick? Are you so certain that a husband's presence, (and I'm not talking about a constant bedside vigil,) and *undivided* attention and love, would not be even more beneficial in the later years of life?


No one is harmed? Here's one person - the husband, who has perhaps innocently but nonetheless deprived himself of the gentle deep grace of steadfastness that can only be experienced by letting your wife be your only love even when that love cannot be returned. Perhaps this is the final opportunity for conversion away from self for this man. Perhaps this is an experience of God's love for us that he will miss out on. God uses people to concretely "explain" himself to us. There are some things I never understood about God until I became a father myself. There are some things perhaps I will never understand about God unless I maintain my covenant with someone without receiving anything in return other than that person.
8.10.2010 | 12:51pm
My generation originated "All we need is love, love, love" but it was always love on our terms.
8.10.2010 | 2:43pm
This was a beautiful article. My stepmother is caring for my aged and disabled father with this type of love. She will not send him to a nursing facility, though he needs total assistance physically and mentally. With the help of part time aides, she cares for my father at home with great love and patience, which I have personally witnessed. And my father is no longer able to carry on a lucid conversation. My stepmother is as devoted to my father now as when they were married a dozen years ago. They are not Christians, but religiously observant Jews.
8.10.2010 | 2:48pm
pentamom says:
Mr. Peterson is also harmed by the violence done to the conscience in discarding one of the most solemn vows it is possible to make. I feel deeply for the man and his desire for emotional satisfaction when it is no longer available from his wife, but it is impossible for a Christian to say that even one's deepest emotional longings supersede his duties before God and his need of a clean conscience.
8.10.2010 | 2:59pm
I understand that many will not be comfortable with my utilitarian notion. But as an elderly internist who has spent much time in the homes of the disabled I have noted that the perfect constancy of devotion that so many of you like to presume can be a well maintained illusion. Many caretaker relatives have revealed this to me in a near confessional manner. There is life as you would like it to be and then there is life as it really is. Ask any priest.
8.10.2010 | 3:12pm
Maria says:
Today , Feast of St.Lawrence , a saint who counted the wealth of The Church in its poor , many of us looking at the various poverties in our midst ..

Hoping that the effects of some of the good alternative therapies would be looked at , in some chronic ailments ..there is mention of the Indian Mulberry juice , in Book of Maccabees ; it is otherwsie populary known as noni juice , considered good for a variety of ailments and its cultivation, if popularised , could serve many poor in the tropics ..

B12 , esp. under the tongue, in older persons , a little addition of other supporters , such as even codliver oil , even avoidance of certain items such as dairy that many could be sensitive to - all these could have its place in chronic inflammations .

The Word tell us that a husband's body belongs to the wife and vice versa ..

Let us hope that such a deep identity would help us all , to ponder as to all the implications of events ..are there areas that need deep repentance ..even rebuking prayers .. ..and the sharpening of those skills to bring much good ..

Many nursing homes seem as forlorn areas ..and even Church groups who go to visit spending the time in nursery like projects ..
and persons spending time in mindless t.v viewing ..

How much diffrent it could be if we have the peaceful chants of Gregorain music and Divine mercy , even joyful rhythms of good energetic Jewish music in the air ...and mixed groups of children and teens visiting often enough ...

Prevention of Alzheimers too ..talk about stress as a cause .. toxins such as alumimnum ..The Word warning us of poisons , may be esp. in these times of ours ..and what would spare us ..how those of us who have been given good weapons against stress , such as a good confession , Adoration and yes , again prayers that rebuke the spirit of idolatry ...and any unforgiveness ..taking it all to the One who alone can deal with it all !

and may be the friend mentioned in the article would turn out to be a good sister sort of friend ...that his two daughters can recall the heroic father role , and in turn to be persons who would think of The Father with so much love ..and a smile !
8.10.2010 | 3:45pm
JDD says:
Mike,

I don't think anyone is disagreeing with your assessment of the reality. But you seem to be swayed that it is an acceptable reality. With that you'll get a disagreement.


The actions being discussed here are not a mere distancing from a "perfect constancy of devotion." The man has in all practical senses - certainly in the emotional sense - taken a second wife. That's not merely a utilitarian decision.
8.10.2010 | 4:45pm
pentamom says:
Yes, it's easy to chalk up calls to fidelity to a highly romantic belief that one can maintain unswerving devotion in the midst of a devastating kind of alienation. However, I generally give the people commenting here more credit that than. I believe that what's being said is that fidelity to the marriage is paramount even when it's hard -- even when the internal feeling doesn't match the external performance of duty.

BTW, if the person is maintaining a constancy toward the debilitated spouse, that is no "illusion." The difference between feelings and performance is not equal to the difference between reality and illusion. The devotion is still being shown, and most significantly, the violation that Mr. Peterson is committing is still refrained from.
8.10.2010 | 5:22pm
Gail F says:
Last week I saw a long promo for a special issue of "20/20" focusing on people whose lives have been "transformed." I entertained the idea of tuning in until the host got to the last story, about a women ("part of a growing trend") who had left her husband and children to move in with another woman and who planned to stay "forever" in this "fulfilling" relationship. I am tired of people declaring their undying happiness, after abandoning their families and commitments, and daring you to tell them they should go back and be UNHAPPY. What about the unhappy abandoned spouses and children? Whose unhappiness trumps whose?

If the television reporter Ms. Scalia writes about wants to be a 19th century aristocrat who has a mistress and still takes care of his disabled wife, then he should go to it. But he should admit that is what he's doing and not expect everyone else to clap for his "very peculiar new American family."
8.10.2010 | 7:32pm
Bob G says:
Ms Scalia: The doctors told you there is no cure or prevention for Alzheimers. "Alternative (aka Natural) Medicine" doctors dispute that. They say that curcumin and tumeric prevent dementia. India, where these substances are consumed constantly, has the highest index of mental health among the aged in the world. There is little or no Alzheimers there. I take both of those things regularly.

Let's not dismiss Dr. Murray too quickly. I saw it close up too. After the wife of a famous prof told me of her troubles with her sinking hubby, perhaps foolishly I volunteered to help. I lived there for a couple of months and the scene was ghastly. It is a miracle if love survives under certain conditions. I hope I will be ready but will not place any bets.
8.10.2010 | 7:55pm
Gil Costello says:
Scott - your question: 'How am I to relate to these people?'

When my sister chose to take a giant step into eternal darkness (as she perceived it) to escape what she considered the darkness of her life by drinking a quart bottle of pain cocktail, she ended up in a coma, and six neurologists confirmed that she "would never recognize a person, would never have a thought. She is essentially a vegetable."

I chose to care for her, arranging for her to be in a nursing home close to where I lived during my work hours, and her living with me the rest of the time. It was strange: all it took was to make the decision to do so, and I entered holy ground: my life did become what Paul suggested it should be, a praying all the time. And it was during that time that I came to live the joy that Jesus promised in all my relationships, but especially (in answering your question) in those who kept fighting against my decision. I lived the truth in love, especially towards those who made themselves my enemy in fighting to finish what my sister had started: "It's her right! It's what she chose!" I always spoke the truth in love without hesitation, and to answer your question, one must move into prayer/agape and speak as the Holy Spirit encourages us to speak. The strange thing was my sister, against all the assurances otherwise, came around, and her first words to me were, "Thanks for saving my life." You see, my sister didn't want to die: she wanted to end her suffering, which began in childhood when our dad assigned her the role of surrogate wife.

My sister's "lover" had lots of money and fought me in court, and everyone who had witnessed that I was being faithful to my commitment, especially the guardian ad litem, came over to my side and supported my efforts until my sister's lover brought up my past as a notorious criminal and drug addict (even though 25 years had passed since my involvement): it was then that everyone turned on me and the court eventually gave her lover custody, and her lover did what she promised she would do, ended my sister’s life -- via severe neglect.

Descartes severed reasoning from the “animal” side of human existence, and since then the judgment of the physical by our reason has only escalated. In this mode where reason dominates the physical, passing judgment on the latter becomes easy, especially when the latter is judged useless by the former. Even we Christians have in one degree or another lost the essential insight that the spirit is what contains the physical and the cognitive processes, and when either or both of the latter begin to fail, the containment is still there in the spiritual, which cannot be violated, for it is a violation of the Holy Spirit. Only agape moves us to live in the movements of the Holy Spirit. But as children of Descartes and Kant, we too often choose reason over agape.
8.10.2010 | 9:03pm
a priest says:
The attitude of Dr. Murray is the same that justifies "mercy killing". If it's all about our "happiness", we must always be happy. When we are not happy, we must find a way to end the misery. Commitment is sacrifice! Our Lady of Lourdes told Bernadette: "I can not promise you happiness in this world only in the next."
8.10.2010 | 9:56pm
Tone Staple says:
I'm not so sure, Dr. Murray. Like most people, Barry Petersen and Jan Chorlton probably pledged to each other that they would forsake all others and cleave only to each other, as long as they both shall live. Plus there's that bit about "in sickness and in health." Now it's obvious to everyone that Jan is feeling no pain about what Barry has done. She simply has no idea.

But Barry does. He knows that he is an oath-breaker. He knows his promises aren't worth spit. And he may think to himself that he's not hurting anyone and that he keeps his promises to people who have some way of knowing whether or not he does, and every other justification in that video. But he knows he really is a liar and an oath-breaker, and that's got to cost him something.
8.11.2010 | 11:24am
skip says:
Jesus also urged us to give without expectation of return. Surely that is an aspect of
the love described in this beautiful article.
8.11.2010 | 11:41am
Gina says:
That was a wonderful piece. Thank you, and God bless you.
8.11.2010 | 11:48am
Terri says:
I think it's easy in this life to sometimes make decisions in ways that rationalize what is essentially our own way of avoiding pain. It takes a strong Christian to walk through the fire. Thanks for reminding all of us that when we take vows, marriage or ones to Christ, they are eternally binding. I cannot help but think in the eternities when that lunch-toting husband gets his beautiful immortal wife back what she will say to him for all the faithful years that Dr. Murray will surely miss out hearing or frankly deserving.
8.11.2010 | 12:00pm
David Dennis says:
Surely the very existence of Alzheimer's disease is proof that there is either no God, or at least He is frequently cruel, evil and capricious.

Making enormous sacrifices for someone who cannot even witness and appreciate them seems, honestly, dumb. I have personally witnessed Alzheimers in the mother of my best friend, and no matter how hard you try, you cannot reach their now vanished minds.

I saw my friend try desperately to reach his mother, who he loved, and I could see that she was truly no longer with us.

Should I get married, and should I later suffer from Alzheimers, I would explicitly like my wife to give me the best care possible, and to find someone new she could be happy with. I would, in other words, expressly not want her to suffer as you are suggesting would be her obligation.

David
David
8.11.2010 | 12:08pm
Eric Blair says:
"Thanks for reminding all of us that when we take vows, marriage or ones to Christ, they are eternally binding."

This is simply not so. (At least in the Catholic Church) The death of a spouse releases one from the marriage vow.

Otherwise how could anyone marry again in the church after that?
8.11.2010 | 12:13pm
Kelly says:
The flip side to this story is Sandra Day O'Connor. She placed her husband in assisted living because of his alzheimer's. He fell in love with one of the patients after his memory erased his wife and children. Sandra still visited him and his new love, watched them hold hands, laugh together and was somehow happy for him. That is true devotion. My mother-n-law has alzheimer's and I cannot imagine what it would do to my devoted father-n-law to face a similar situation.
8.11.2010 | 12:17pm
James Felix says:
@ Tone Staple (and anyone similarly self-righteous)

I'd be very interested to see what choice YOU make when faced with the prospect, at a young age, of being unhappy for the rest of your life.
8.11.2010 | 12:18pm
alittlesense says:
Clearly this is a very difficult situation, and one which I would not wish on my worst enemy. However, the responses, and the thrust of Scalia's initial post, trouble me. Not so much because they agree with her, or disagree with the journalist in the story, but because of what is coming across as a slightly smug attitude from several of the commenters, and an indefensible comparison. The comparison I'm referring to is the comparison to euthanasia. Such a comparison should be made much more carefully, and with at least some more detailed explanation of why the comparison is valid. I saw none of that.

What troubles me more, though, is the notion of how wonderful suffering is. I've noticed that this is often espoused most actively by those who have suffered the least. Also, to glibly proclaim that you understand another's suffering so well that you can rate it. I've seen suffering, and it is extremely rare that it is or can be turned into a sort of grace.

Last point, I fully expect to be surprised by who I meet in heaven. The righteous commenters here I expect will also be surprised, but unpleasantly. How will they be able to stand seeing people in heaven who they were so sure didn't deserve it? But we do like to make God the junior partner in deciding who gets to heaven and who doesn't, don't we?
8.11.2010 | 12:29pm
Kathie says:
Have you checked wheat allergy?

This seems out of place because its not spiritual - but still people should think about the physical.

Wheat allergy - not glucose or ceoliac but the rarer wheat allergy - causes body wide inflammation thus intensifying arthritis. It also dims your mind because you are fatigued from the inflammation - like being very tired. But you can't see why you are tired after a good sleep and a"good" breakfast of toast and eggs.

It's very easy to check out. Just don't eat wheat for three days. If your energy soars in that time, you have the allergy. After that avoid wheat as much as possible because its effect is just like a low fever.

And I believe sensitivity to this allergy increases with age.
8.11.2010 | 12:33pm
John says:
When society determines that people are not made in the image of God, human dignity loses its intrinsic value.
8.11.2010 | 12:41pm
Brook says:
In light of its content, the blog post title works equally well without the commas or the word "and": Love Limits Loss.
8.11.2010 | 12:54pm
Lane Seymour says:
The best modern example I know of selfless love in the face of Alzheimer's is Robertson McQuilkin. Google. Read. Worship.
8.11.2010 | 12:59pm
Hucbald says:
Timely. My 81 y/o mother is suffering from severe dementia and is a major behavioral nightmare. I mean, to the point that I'm having to take her to court just to get her to see a neurologist, which her state caseworker and the director of her retirement community say I must do. The end result will be that I become her legal guardian, which she will hate because she blames me for all of her problems (Only child).

I love my mom, but I hate having to even see her anymore. Sad, because we used to have an awesome relationship (I'm betting she had about a 130 IQ in her prime).

I believe it's important to understand that some people are blessed with the abilities necessary to be good caregivers - the behavioral nurse working with mom is a genius with dementia patients - and some are not, through no fault of their own.

I was definitely not cut out to deal with irrational people (I'm also allergic to children for the same reason), but i certainly respect those who can.
8.11.2010 | 1:19pm
pam says:
This is in response to alittlesense.

How do you know how much people on this thread have suffered. Why don't you go tell Gil Costello how little he has suffered. Did you know that when you are accusing people of being too judgemental you are yourself making a judgement. Better check the beam in your own eye before you try to remove the speck from others.
8.11.2010 | 1:36pm
PatrickH says:
The problem with Alzheimer's (and other severe forms of brain damage) is that it changes the person with whom you have taken your vows. It's not the same person there who happens to be "sick" or "poor". It's a different person, sometimes down to the fine mannerisms, the individual tics, what they find funny, what bores them, what interests them, right down to some very fine details. When you cease to recognize the person you married in any of the ways that made you love and marry them in the first place, it's very difficult to tell that person they must honour their vow. They could say quite truthfully, that is not the person to whom I vowed fidelity. It's someone else. Someone I would never have married in the first place.

Head injury survivors often change so completely, their spouses feel exactly as if the one they married is dead and gone, and some stranger occupying their body is now sitting there staring at them, maybe even demanding their love. Or perhaps others are reminding them of their vows. But what if that person is gone? Forever? This reaction of the "surviving" spouse is not faithlessness to a sick loved one. It's the recognition emotionally that their loved one is gone. Peterson has taken up with a widow. I don't see anything wrong with that, since he's a widower himself in all but name.
8.11.2010 | 1:45pm
David says, "there is either no God, or at least He is frequently cruel, evil and capricious."

If you don't believe in God, you can call Him whatever you want.

But the truth is that He is never cruel or evil. There are so many stories of people who have found themselves in tough spots and, after patiently trusting the Lord, have seen what at first they hated become a source of blessing. How many have suffered the loss of one job, or one fiance, only to find that the next one was the one they were always waiting for?

If you trust the Lord, He won't let you down.
8.11.2010 | 1:48pm
quasimodo says:
"utilitarian" is a dangerous and frightening word to use in a discussion about human dignity ... which is what this whole issue reduces to.
8.11.2010 | 2:12pm
Old Patriot says:
Elizabeth,
I know very well what you've gone through with the neurological problems. I have a bad back - a two-level cervical fusion (that will be extended to three levels later this month), osteoarthritis both in the facet joints and in the disk spaces, degenerative disk disease, a couple of bulging disks and a herniated disk in my lower back. Pain is a daily visitor, and remembering what day of the week it is is occasionally very difficult. Thankfully, I have a loving wife that takes care of me.

My wife's mother was diagnosed with Alzheimer's in 1985, and died in 2005 from the disease. She didn't recognize any member of her family for the last ten years of her life. That was especially hard for my wife, who was very close to her mother. My wife has a great fear that she will also develop Alzheimer's (my wife is 67, and her mother was 65 when she began to have problems). We both pray that some of the research now being done will lead to ways to forestall the disease, if not prevent it.

The best Gift that God has ever given me, save for His Son, has been this wonderful woman that has been my wife for the past 45 years.
8.11.2010 | 2:27pm
John Hansen says:
Mike MD,
I feel very sorry for you. You are just the sort of utilitarian who thinks himself to be wise and pities the poor ignorant religious. Yet you are the one missing out. You have a philosophy which can not find God.

Try reading the book of Job. There is hope for you yet, if you will just drop what you think you know and open yourself to the eternity of who God is.
8.11.2010 | 2:30pm
David Dennis says:
Ali, that was a very good answer, except for one thing.

Please list for me all of the positive aspects of having Alzheimers' Disease, or of watching someone you care about suffer from it.

While I am sure Pam is right in responding to A Little Sense in saying that s/he cannot evaluate the suffering of people he does not know, I think the essential point is valid. Why are we saying suffering is such a good thing?

I would hope if there was a God, he would not want us to suffer and be miserable. If there is a God who wants us to suffer and be miserable, I have to ask, well, why do we worship and thank someone who has caused so much misery? That doesn't make any sense.

David
8.11.2010 | 2:40pm
NoGluten says:
I agree that it is worth checking for gluten intolerance. It may take longer than 3 days though and involves avoiding wheat, barley and rye. There are some interesting posts on various gluten boards about folks with gluten intolerance (some with celiac), Lyme and neurological issues (including forms of dementia and ataxia.) The gluten free diet can be helpful in some of these cases. One place to start for information on this top is is Gluten Free and Beyond http://www.glutenfreeandbeyond.org/
Another is celiac.com

Celiac, like Lyne, is a great imitator in terms of symptoms and under-diagnosed.
8.11.2010 | 2:44pm
If I understand Terri correctly, from my two comments above she has been vouchsafed the vision that I shall not enter heaven. Like Scrooge, I would like to know if this is a portent of things that shall be or may be. Sometimes this site can become self-righteousness heaped high.
8.11.2010 | 2:51pm
pentamom says:
Some of the commenters here seem to be mistakenly confusing stating the principle of which is right, and claiming that any or all of us would do it easily, cheerfully, or for that matter, at all.

I tremble to think how I'd react in such a situation myself. The likelihood that I'd fail to do the right thing is pretty high, and the only thing that could possibly stand between me and that is the grace of God. But that doesn't change what is right. If I began to rate moral responses based on what I'd do if left to myself, I'd become an international advocate for sitting around eating chips, reading novels, and net-surfing. Thankfully, I am motivated to pursue better things, even though I know I don't always do even the easy stuff right.
8.11.2010 | 2:55pm
JuliB says:
Anchoress, I hope you link your future columns from your blog so I will be sure to read it.

Have you had a B12 test? Such a simple test, but it can mimic dementia,alzheimers, etc. It can also lead to incurable mental decline. I have a severe deficiency and have minor balance problems,etc. Pls check into this if you haven't.

Perhaps some commenters sound smug, but I think we have in mind the ideal / goal of Catholic service. Just like all ideals, I would hope I could rise to meet the challenge (with His help), but hope I am never put to the test.
8.11.2010 | 3:28pm
Maureen says:
Re: marrying a person who's no longer there --

A person is the totality of a human being. If you marry a person, you marry all the possible ways they can ever be. You marry them waking and sleeping, you marry them demented, you marry them criminal.

Re: sickness and health --

Of course that was considered in the vows. Do you really think nobody ever grew "senile" or "addled", back in the day? They married 'em in the expectation of no anesthesia, a solid chance of death in every childbirth, horrible diseases everywhere, and a good chance of starvation or exposure deaths for a lot of people. In other words, they had a highly realistic view of life; but we somehow think that pain and fear and unhappiness will never apply to us.

The whole point of marriage vows is to say, "No matter what happens, no matter how hopeless or helpless you are, I will be your husband and you will be my wife as long as we live. You can trust me and I believe I can trust you."

If people don't have the skill or temperament to take care of a loved one every day or in their own home, that's no disgrace. That's why nurses and helpers and care homes exist. That's not abandonment, as long as you're trying.

I pity people whose spouses have Alzheimer's, and their lives are hard, and it may be hard for them to keep their vows. But it is also hard for soldiers to keep their oaths and stand their ground under fire, and yet they do it -- for their buddies, not even their spouses -- for an abstract Constitution, for people they don't know.

Break an oath, and you prove yourself a coward. Barry Petersen broke his vows, and proved himself faithless and a nithing. I'm not sure what the other woman broke -- her common sense, for certain. She'd better take good care of herself and never ever get sick or hurt, because a man who'll throw away one will throw away two.

But saying that a vow only counts if someone is fully conscious and has the same personality as when you married is like saying that a vow only counts if your spouse is awake, or if it hasn't been more than five minutes since you married. Saying that it doesn't count if the other person doesn't know is like saying that, if you don't do something in front of a camera or a microphone or another observer, it never happened. Ridiculous.
8.11.2010 | 5:12pm
Orion says:
Alzheimer's is one of my true terrors. I am an EMT and see people suffering from this hideous disease frequently. I have NO wish to be trapped in such a living hell and have taken steps to be sure that I will not. If I am too far gone to pull the trigger myself, I have friends who have sworn to do so for me. I've taken out Durable Powers of Attorney for Health Care and a Living Will in multiple states.

I wrote a bit on when suicide is quite justifiable a while ago:
http://blog-in-the-box.blogspot.com/2008/08/suicide-is-painless.html

If I could choose between curing cancer and curing Alzheimer's, I'd pick Alzheimer's every time. The strength and dedication of the folks who have a loved one with Alzheimer's is truly amazing and awe-inspiring...

Orion
8.11.2010 | 5:23pm
Joe says:
Anchoress: Don't worry too much about the Lyme Disease, you still very much have your mental capabilities. That is a profound and deep post.
8.11.2010 | 5:42pm
pentamom says:
Dr. Murray, it seems to me that Terri is saying that if you prematurely replace someone because you no longer feel that you are bound to that person because of his or her disabilities, you will never hear that person thank you for not prematurely replacing him or her, for obvious reasons. I wouldn't read more into it than that.
8.11.2010 | 5:44pm
Gapeseed says:
Anchoress - in your trove of beautiful writing, this is one of your best.
8.11.2010 | 7:25pm
JEM says:
"Break an oath, and you prove yourself a coward. Barry Petersen broke his vows, and proved himself faithless and a nithing."

I cannot dispute the truth of the comment; however, I have pity on him, as I do for all sinners like myself. We strive for an ideal - and we fail more often than we would like. Those who have publically taken umbrage at Mr. Peterson's behavior should take heed of their righteous anger for no one knows when they will face the test. I would ask from you some charity, while acknowledging quietly his failure.

To those who seem to think this isn't a failure, obviously you are entitled your opinion, but I am afraid that your utilitarianism is a very callous and in the end vicious way to measure our few years on earth. No one made him take the vow, we must assume he chose to do so on his own. Commitment seems a very scary word to many of the modernists, who ask the state to clean up their sources of unhappiness. It's a world I would like to see us try to more actively avoid.
8.11.2010 | 7:32pm
Gil Costello says:
David Dennis - During the four times I have abided with persons who were dying, I came closer to understanding that God defeated death and that all that really matters in the end is that I love the persons I abide with, which makes me grateful for the suffering I was enmeshed in. It’s a great mystery, but everything that encumbers us, including great suffering, can show us a road to great love, a love that transcends the encumbrances and suffering that delivered us into great love.
8.11.2010 | 8:13pm
Maureen, you make marriage sound horribly unattractive - a contract in which dreadful risks are undertaken for horribly uncertain rewards. What kind of life do you offer the woman who is deceived by a criminal and marries one?

I think that's what I dislike about the Catholic Church - I understand its principles and why they are there, but they seem horribly rigid and unforgiving.

I am used to thinking of God as supposedly merciful and forgiving, and yet having to stick with a criminal, or someone whose mind is no longer with me, seems like the very opposite of mercy.

D
8.11.2010 | 9:37pm
gb says:
Above average essay, as usual, Anchoress.
As a director of nursing in a nursing home for awhile I saw several husbands who were as attentive to their demented spouses as the one your neighbor describes. Once, I said to one who was pushing his wife in her wc, "Do you know what an inspiration your dedication to her is to the staff here?". He was obviously surprised & said, "But you all have no idea how much she's done for me for so many years"...which only made the whole story more inspiring to me!
8.11.2010 | 10:34pm
ScaldisNoel says:
I am heartened, inspired and, at the same time, saddened by the story of the man who visits his Alzheimer's afflicted wife every day because ‘...she is my bride; if I did not see her, I would miss her.’

My wife is facing depression and alcoholism, and has become more and more distant from me and her entire family over a few years. Right now, despite admitting that she is an alcoholic and being sober for 2 months, she seems to be losing her fight. While they are medically very different from Alzheimer's, the effect of her alcoholism and depression on all of us is very similar to that of an Alzheimer's family. My wife has moved out of our house, and I and her family seldom see her. I feel the same way that man does, ‘...she is my bride; if I did not see her, I would miss her.’ Right now, I miss her terribly. However, I take heart that my commitment to my marriage and to my wife, despite the pain and difficulty, are God's will.

Elizabeth, thank you for providing me with some much needed inspiration.
8.12.2010 | 12:15am
Taxpayer says:
I've been lucky to have some very, very strong role models to follow.

My mother cared for her husband as he disintegrated into dementia. Not once did she ever think about putting him in a home and 'getting on with life'. It took us a lot of prodding to get her to hire a caregiver to at least give her some respite. I really admire the way she so lovingly cared for him. He died three years ago. She really misses her best friend.

My stepmom cared for my father as he slowly died of cancer. She, too, was at his side every minute and cared for him with great love and gentleness. My father didn't want to be cared for by strangers, and she gladly made sure his wish was followed. Hospice was called just as formality. I'm amazed at her strength and capability. But she had a lot of experience; my dad was her second husband to die of cancer.

I hope I have one-tenth the strength they do if I need to care for my loving husband, my best friend, the love of my life.
8.12.2010 | 12:59am
Alex Lucero says:
As followers of Jesus, we do not choose suffering, rather we choose to do God's will. If doing so involves suffering and sacrifice, then so be it.
8.12.2010 | 1:19am
David Grecu says:
I would love to share this on Facebook, but the entire piece is embedded. Webmaster, take notice!
8.12.2010 | 2:58am
First of all, Anchoress, a tiny bit of levity-- my Mom had a series of small strokes over several years, and wound up with mild aphasia (which of course isn't "mild" to the person trying to find the right word to describe something). At least she still had the ability to chuckle one day when talking about some mountain goats she'd seen: "Mountain boats. No; mountain boats. I mean ... mountain boats..." and she broke into laughter because she knew it was the wrong word and just couldn't, COULDN'T grab the right one. Bless her.

Back to commenting on the comments:

Ali Rabinowitz says 8.11.2010 | 10:45am :
"David says, "there is either no God, or at least He is frequently cruel, evil and capricious." But ... He is never cruel or evil. ... How many have suffered the loss of one job, or one fiance, only to find that the next one was the one they were always waiting for? If you trust the Lord, He won't let you down."
========================

Sadly, not everybody gets the experience of "Something even better comes along" or "He won't let you down". Despite the certainty of your words, it just doesn't always work that way for everybody. Sometimes people are simply crushed by life -- does it mean it's their fault? are they not strong enough in their faith? when they can find no good, feel no hope, in the midst of their misery. Your statements come very close to the bromide "God won't give anyone a burden they can't handle", which is such a sweet, blithe, hopeful claim; yet how do you reconcile it with the real-world fact of suicide? Surely that's concrete proof that somebody "can't handle" those challenges. One might ask why the Almighty apparently doesn't know which of his children can't bear the burdens he lays on them...!

Sometimes it DOES seem like God is being cruel and capricious, even though our understanding is that God is loving, merciful, and All-Good.

I guess all I'm saying is that we don't know what others may be struggling with; life is hard, and then it seems to get harder. May there indeed be a loving God who helps us all.
8.12.2010 | 4:14am
txw says:
Oh boy, the alties are commenting on FT. Maria, Bob G, Kathie, NoGluten, JuliB while your concern is sincere, the offers are based on falsehood. Aquinas said superstitious medicine is from the devil. Many vitamin cures and various all natural herbs offer false promises and are based on gnosticism, not science. The atheist crowd is, to their credit, doing a good job of exposing such fraud. Unfortunately, the subject is used to attack the faithful as clueless and unrational.
There is no current cure for Alzheimer's or neurological sequelae of Lyme's. None.
8.12.2010 | 6:59am
Ann says:
Here is another beautiful essay on this topic from First Things

http://www.firstthings.com/article/2010/03/i-want-to-burden-my-loved-ones

Please note that no one who disagrees with a utilitarian view of things and Barry Peterson's actions thinks any of this is easy, nor are most of us smug. And based on what has been written I would say that the posters have suffered quite a bit otherwise they wouldn't have been able to express their thoughts so well. If you don't understand the benefit of suffering or have never experienced the grace that can come from it then I have to ask: are you Christian? Do you believe in God and have you given yourself over to Him and His will completely? I don't think suffering makes any sense until you accept Jesus and His as necessary for our salvation.

If you are about to say I am self righteous, idealistic or somehow irrational, please know before you do that I have suffered. I am not going to give details, it would take too long, on the other hand many have gone through similar things. It is this thing we call life and sometimes it stinks. And sometimes my suffering is nothing to others sometimes they get it. No matter. God is in charge and as long as I remember that then I am a recipient of His grace and I just don't have words for how it all works.

Love with limits isn't really love at all, certainly not true love in the way that God loves us. Love and vows that are only good until something changes (health, finances, convenience etc.) is really at the crux of our culture of death. How shallow we are that when the going gets tough the love is gone. I would say that it is actually idealistic and unrealistic to think that vows and committments are only binding until something changes. Maybe the poster didn't mean it this way but how shallow, how immature, how many times has that been used as an excuse for infidelity and "I don't love you anymore because blah blah blah". Believe me I have had moments when I wondered who it was that I married. That was a period that I call "when the rubber hits the road." I think we all have them and boy was I surprised when it hit me and my life. I thought I was different. If it wasn't for the conviction that was implanted in me through grace before I ever said "I do", the conviction that no matter WHAT this was for life, I would be divorced with 3 children and it would read like a soap opera. The promise was made long before I knew what I was getting into but that doesn't change the promise which comes down to "no matter what."

Now for those who respond with how insensitive the Church is on insisting that we stay locked in unhappy even disasterous situations: you do not know what you are talking about. The Church is very much aware that some marriages will fail and recognizes that some of those marriages were doomed from the start. It takes a great deal of work and fortitude and all kind of other graces to keep a marriage together. It is really nothing short of a miracle so really if you don't have God you won't understand any of this. The stories related here of spouses keeping their vows are miracles grace each day. Miracles! Suffering is going to get us whether we believe or not. How much better to believe and experience miracles everyday.

God bless.
8.12.2010 | 9:32am
Dave says:
ScaldisNoel says:
"My wife is facing depression and alcoholism, and has become more and more distant from me and her entire family over a few years. Right now, despite admitting that she is an alcoholic and being sober for 2 months, she seems to be losing her fight."

2 months is early days recovery for either alcohol or depression. Maybe just give time time. Maybe a little outside help for yourself?
8.12.2010 | 11:28am
Ann says:
"Your statements come very close to the bromide "God won't give anyone a burden they can't handle"

This is not a bromide or platitude. This is from scripture and it is a promise. God has promised that he will give us whatever we need to handle whatever burden has come our way. However, it is up to us to accept the burden, ask for His help and accept that help. So yes, how much faith and trust you have plays a HUGE role in how things turn out. That said, God will give you the faith and trust that you need but you have to accept those gifts as well. We cannot control what happens to us, most of the time, but we do control how we react-free will.

Yes, suicide is the result of a lack or loss of faith. It is a sign of desparation, of complete lack of hope. You will not lack hope if you have faith. I don't mean to say that it is just a matter of "pull up your bootstraps" and you will feel better. Not at all. There are a lot of factors at play with depression so deep it leads to suicical thoughts and actions and a lot of things may be needed to pull you out of it: counseling, medication, prayer. A strong prayer life and a complete surrender to Our Lord are necessary to keep us from getting to the edge of despair or from falling over that edge. It is very complicated and very sad and I have nothing but sympathy and empathy for those without hope or faith. I pray often that the Lord keep His hand on me so that I don't approach the edge or fall over. It is only by the grace of God that I haven't succumbed to despair thus far and it is only by His grace that I continue on. I know that I am no better than anyone else, just blessed with the gift of faith and all that entails.

God bless.
10.2.2010 | 2:58am
It's very easy to check out. Just don't eat wheat for three days. If your energy soars in that time, you have the allergy. After that avoid wheat as much as possible because its effect is just like a low fever. Descartes severed reasoning from the animal side of human existence, and since then the judgment of the physical by our reason has only escalated. In this mode where reason dominates the physical, passing judgment on the latter becomes easy, especially when the latter is judged useless by the former. Even we Christians have in one degree or another lost the essential insight that the spirit is what contains the physical and the cognitive processes, and when either or both of the latter begin to fail, the containment is still there in the spiritual, which cannot be violated, for it is a violation of the Holy Spirit. Only agape moves us to live in the movements of the Holy Spirit. But as children of Descartes and Kant, we too often choose reason over agape.
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